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Links to websites with neuromuscular information

Treat-NMD: A network for people with neuromuscular diseases and professionals working in the field. It aims to advance diagnosis and care and develop new treatments for the benefit of patients and families, working closely with scientists, healthcare professionals, the pharmaceutical industry and patient groups around the world.

AFM: French muscular dystrophy association

MD net: The German Muscular Dystrophy Network (MD-NET) is a joint collaboration of medical professionals and scientists from all over Germany with a special interest in muscular dystrophies.

PubMed Home: Scientific papers

OMIM Home: Database of human genes and genetic disorders

NMDC Washington: Neuromuscular Homepage (wustl)
Neuromuscular Disease Center, Washington University.
Review of various muscle, nerve and neuromuscular disorders with links to relevant sites.

Gene Clinics: GeneTests website
A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons.

LOD: Landelijk overleg DNA Diagnostiek (Dutch)
Het LOD is het landelijk overleg DNA-diagnostiek van de DNA-diagnostiek laboratoria van de Klinisch Genetische Centra in Nederland.

European Neuromuscular Centre (ENMC): International research support organization for neuromuscular disorders

Prinses Beatrix Spierfonds: Dutch charity fund. The goal of the Prinses Beatrix Spierfonds is to contribute to the treatment of neuromuscular diseases and to improve the quality of life for patients with a neuromuscular disease

Vereniging Spierziekten Nederland: Dutch patient association for neuromuscular diseases

TREAT-NMD: TREAT-NMD is a network that brings together people with neuromuscular diseases and specialists working on treatments for these conditions

Nederlandse Vereniging voor Neurologie: The Dutch association of Neurology.  

Nederlandse Vereniging van Revalidatieartsen: The Dutch association of Rehabilitation Physicians.

Nederlandse Vereniging voor Kinderneurologie: The Dutch association of Paediatric Neurology.

CBO guidelines: Dutch website with official guidelines

Journal of Neurology and Neurosurgery: Find papers published in this journal

Insitute for fundamental and clinical human movement sciences: The main missionof the Institute for Fundamental and Clinical Human Movement Sciences (IFKB) is to generate fundamental and clinical knowledge about healthy and pathological movement and the functioning of the human motor apparatus.

Dutch Myotonic Dystrophy website: The department of neurology of the Maastricht University Medical Centre (MUMC) has launched a dutch website about Myotonic Dystrophy. The website contains information especially for patients and family members. It is written in clear language and has beautiful bright illustrations. This website gives a good overview of the different clinical, functional and social aspects of Myotonic Dystrophy. It also contains links for professionals, and will be expanded in the near future.